Medical Update: My ECG is on Wednesday morning.  Have to have clean hair with no products in it so am going to be a frizzy mess.

Medical Update: NHS i love you but you have to make it easier for people to contact you.  Spoke to six different people who kept giving me new phones numbers before i got through to the right person.  Finally got there and the nice women read out my report for me. Still no answers though.  MRI came back fine, no lesions which is good, but still don't know what is wrong with me.  Have to wait for a EKG next to check for epilepsy.   Have i mentioned i hate waiting?

Random: No, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no, no! 


Why are pointy shoes back?

Thought of the day (aka rant): I found out yesterday that if a crime happens on a cruise ship then the police of the place where the ship is registered has jurisdiction.  Quite a few ships (including the one James is planning to take us on) are registered in the Bahamas. When Rebecca Coriam disappeared the Bahamas police sent one officer.  James said that the cruise would be a good place to kill me.  If i don't come back you know why although now that I've wrote it on my blog he probably won't because he'd be the prime suspect.  Then again, maybe he'll think that no one would believe that he'd be so stupid to kill me after I've written it on my blog that no one would suspect him.  Or, maybe they'll think that he thought that they'd think... i could keep going a very long time.

Not sure why James would want to kill me exactly but i should probably stop nagging him about leaving his shoes in front of my draw just in case (He puts them right in front and then i can't open it, he could put them in front of his draw...).

Anyways, the parents of Rebecca Coriam are campaigning for a change in the law to allow UK authorities to investigate cases of British nationals who go missing on vessels registered abroad.  If you'd like to sign the petition please go to the link below.

http://epetitions.direct.gov.uk/petitions/1061

Medical Update: Had a really bad episode yesterday.  Couldn't move, walk or talk and kept coming back.  Would be so bad if it just came, did it's thing and then went.  When it stops you know that it's coming back soon but you don't know when or how bad it will be.  Couldn't lower my arms to the side of my body at one point.  Is like becoming a statue.  On the plus side, James and I are developed a new language, one grunt for can't talk, two for can't move.  Three for "Shut up James, you're not funny!".  He really isn't!


Feeling shaky at the moment so know it's coming back, just don't know when or how bad it will be.  hope that the NHS ain't forgot about me, would like to know what is wrong with me and if they can fix it at some point.  At your own convenience like, when you have time maybe.

Thought of the day (aka rant): Where did personal responsibility go?  I'm sure i heard of it a some point it but is seems to have vanished.  The amount of injury lawyer adverts on to is annoying me.  Some times bad things happen, it doesn't have to be some one's fault.  If you trip on the pavement don't sue the council, watch where you're going.   How come:

                        When good things happen to you - Good Luck or karma

                        When good things happen to others - Sod's law

                        When bad things happen to others - Karma

                        When bad things happen to you - Look for someone to blame (and a lawyer)

Medical Update: Haven't done any updates for a while as nothing new to add really.  Some days are ok, some days are really bad.  Bad days are generally when it is the least convenient, like not being able eat at a restaurant or having trouble walking around Morrisons.  Bad episodes are getting more frequent and during them i can't walk or talk.  Only get pain on the better days when the tremors stop.  Waiting to find out when i go back to the neurologist to find out the results of the MRI.